Paralympian

User submitted story

By Sonny Davis

Greetings, I go by Sonny Davis.

A few years ago, when I came to the great city of Edmonton, I made a personal commitment to a childhood dream of mine to become an olympian. Well, in my case, a paralympian. At age 5 doctors diagnosed me with a neural muscular disorder called Charcot Marie Tooth disease, which is a form of muscular dystrophy. There is degeneration of muscle and nerve present in my legs and my hands.

I live a “walk and roll” lifestyle. Some days I feel good to walk and others I’ll take to the chair, ergo: “Sonny and Chair.” Sorry, bad wheelchair joke. Having been in Edmonton for over a year and a half now I am happy to say that accessibility is good and I can truly get around.

I began wheelchair racing and training for a good 6-7 years total before making the commitment to myself that in the summer of 2008 I would be on Team Canada racing wheelchair at the paralympic games in Beijing. In order to get there I had to do as many track meets and road races as possible to develop speed, strength and a good base. I worked regularly with my coach to achieve the stamina and nutrition I needed as well as goal setting for fitness and PB’s (personal bests).

Edmonton’s fitness facilities, specifically the Kinsmen Sports Centre, have all been a true blessing and each and every bike path I now train on in my wheelchair becomes a scenic and magical journey.

In disabled sports, athletes are placed in categories according to their class. This is defined by the athlete’s disability or rather, ability. The ability to sit up straight in a wheelchair or the strength in the arms and hands was the difference between tooting along on your own or running with the pack.

In my case, there was ALWAYS a stipulation to whether or not I was this or I was that, due to the nature of my condition and the fact that although I use a wheelchair to get around I still am able to walk. Plus the very obvious wasting in my forearms and hands had several judges and classifiers tipping their monocles to see what was keeping my spine so straight off the track. I just told them, “Practice.”

So I continued to practice even though I still hadn’t been placed in a class yet. I needed a specific classification in order to reach Beijing. My co-athletes had passed that stage and knew what they wanted. Before I started booking flights I had to get a professional international classifier to clas
sify me.

For some athletes it is very easy to tell in which class they will race. Most I have met have all been spinal cord injuries, amps, spina bifida or even blindness. These are obvious to a classifier and with a short interview and some muscle testing they are given a number and sent along: “Good luck!”

I have been very blessed to be an athlete living in Alberta. On top of the city allowing disabled citizens to fully use any city fitness facility, a perk not every athlete is privy to, being on the Alberta team has given me the opportunity to travel, race and meet so many athletes that were like me, in the regard that we could see eye to eye; sorry, more bad wheelchair jokes.

During my competitive years I never did meet any athletes with muscular dystrophy. As far as my coach and I knew I was the only one.

So I trained hard, competed in a number of track meets, road races, marathons and bike tours. In 2005 I travelled to Japan for my first marathon. This is where I would finally receive the classification card I so badly desired for Beijing. I did the race but barely finished. It was a long push with hundreds of other wheelchair athletes from around the world and just as I was about to take the last turn into the final 200 meters, I crashed HARD.

Sparing the gory details, I picked myself up and trudged past the finish line with a bent frame and damaged wheel. Still, I got ‘er done.

Living with MD I’m constantly falling over. My entire life has always been about the practice of persistence. Fall down 6 times, get up 7. When I moved to Edmonton the growth of my spirit would be challenged. I moved away from the comforts and conveniences of home. I would have to adapt my DIS-abilities to new and higher ABILITIES.

Every day is taking one step, or wheel, at a time.

Finally, in 2006, I would reach the qualifying events at the World Championships in Holland. I arrived one week before the race. I focused and trained every day. I had one goal and my intention was strong. This was the road to the Beijing Paralympics.

Just as I thought all my stars were aligned, I receive notice that the classifying judges voted against my class ruling and spontaneously changed my classification card. Shocked, the Team Canada head coaches would appeal the decision two times before I finally had to resign to the fact that despite my hard training and travel all the way to Holland, I would not be racing.

I quite literally watched from the sidelines.

Acceptance came quickly that my dreams and chances for making the team for Beijing were all of sudden dust in the wind.

There is so much more to say about the rise and fall of the human condition and the building of our dreams, just to let them go.

So I did not race in Beijing. However I am now training for a cross Canada tour in 2010 to raise money and awareness for a chosen charity: Muscular Dystrophy.

Above all I want to tell my story to people who find themselves trapped in a prison of names, labels or opinions. Whether it be from pressures from others outside of you or that which arises from within you out of misguided belief or simply the play of duality.

To say that I discovered freedom when I was at my lowest. That I no longer hear people tell me who I am or what "class" I'm in. That I am not defined by a number or a group of letters that describes my condition.

My condition is freedom.

I am frameless!


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Comments about this Story
I am so proud of you Sonny. You are my inspiration. I love you.
05-Aug-09 by Hilary Ayotte

That is amazing Sonny. . You're right about a lot of things, specially when it comes to be judged by a number or a class. No one should ever be told who you are. I wish you all the best and God Speed my friend..
06-Aug-09 by Eduardo Lopez

Sonny your positivity continues to amaze and inspire me.
06-Aug-09 by Marianne Moodie

I'm glad to have met and know you Sonny!!! U are awesome and I support you 110%!!! Cheering you on:)
06-Aug-09 by Stef

Sonny you are an inspiration to anyone you meet. I believe you are the strongest person I know and feel very priviliaged to have met you! Keep Shining super star!
06-Aug-09 by Carrie Reeves

Hey Sonny, thanks for sharing your story, it's beautiful and perfect. Thanks for being such a lovely soul that others (such as i) can feel when in your presence.
17-Aug-09 by Jodi Seven

You rock Sonny and are a hero in my eyes, I'd love to support your cause anyway I can.
11-Aug-09 by Marc Meyer

You continue to be amazing, Sonny!! Love your tenacity, positive outlook, and ever present sense of humour. Exciting plans for 2010, I'll be cheering for you!!
08-Aug-09 by Linda

A great brother with heart and soul and backbone. Live your dreams and attract more of the joi de vivre that you excude. You have but to ask and the Universe will provide. Love and Light top you, Sonyy. Have FUN and good luck - sandy
17-Aug-09 by Sandy M

WOW! I am a fan. I am so happy for you!!
21-Aug-09 by Kate Haug

Sonny - I am so proud of you - you are a true inspiration to us all. We all love you very much and are blessed to call you friend and brother! From your WarriorSage family in Calgary. Ronda
21-Aug-09 by Ronda E

Thank you for sharing this story with me and so many others. Your abilities are enormous. Here's 'chairing' you on in Carlisle, Ontario. (: keep on rockin and rollin' my friend. whoot for 2010
22-Aug-09 by Erika V

That's my boy!!!!!
30-Aug-09 by Stephen Garrett

WOW Sonny, absolutely amazing! But then again I am not surprised. Regardless of the standings, you are Number 1! Go for it my Wizard Brother!
31-Aug-09 by Shawn

Shine ON, Sonny! You Rock! Big Love, ddo
03-Sep-09 by Dawn Dancing Otter

Sonny, you are an inspiration to all you meet. Your glorious soul shines through and lifts everyone to a higher level. You are my brother Wizard. Mark
03-Sep-09 by Mark J

You are an amazing warrior and wizard. Your spirit inspires me. Thank you for your love. Aho and So be it.
03-Sep-09 by Carol Vanderheiden

Sonny you are an inspiration to so many. Your strength of character, open heart and zest for life is a rare combination. May your light awaken the spark in the hearts of others. Love you!
03-Sep-09 by Katharina

Sonny you absolutely are amazing keep up the good work and don't let anything keep you from reaching your goals
09-Sep-09 by Richard Bishop

Thanks Sonny........Your inspiration, energy, and truth as a Brother is Incredible.......
09-Sep-09 by Garry Nordell

You are a true inspiration Sonny! Can't wait to hear about your journey in 2010. Tom and I are behind you all the way!
10-Sep-09 by Glenda Lane

Thank you Sonny for being the courageous person you were meant to be! Very inspiring!! It's truly an honour to be your friends, Thank you!
10-Sep-09 by Heather & Wayne M

You live a legendary journey and you constantly become brighter and stronger. You will accomplish all that you set out to achieve Love. Thank you for being a constant pulse of rhythmic inspiration in my life and in so many others lives' which you touch.
10-Sep-09 by Vi An

Sonny I see you. Thank you for standing out and rolling on. Keep on dancing.
11-Sep-09 by Robin Moore-Slater

Natalka & I have had the sheer privilege, of knowing Sonny & Chair for over 5 yrs now. He is truly a remarkable man, an amazing musician a blessing it is to call him our friend.
12-Sep-09 by Robert Groove

I've never met you but you have the Talbot spirit. We won't let them get us down. Best of Luck from your cousins in Dublin
13-Sep-09 by Maria Meyler Bennett

Sonny it was awesome meeting you at the Terry Fox Run yesterday!! I am so proud of you and your story is amazing....and the Sonny and Chair joke is GOLD!
14-Sep-09 by Amna

Now I truly know the definition of courage,BRAVO
14-Sep-09 by Ian Young

I am always happy to hear stories about Sonny and Chair. :) They make me smile, laugh and cry every time. You continue to inspire me Sonny!
14-Sep-09 by Ben's Momma Terri

Sonny, i dont we had meet but you are my new hero. I am under Muscular Dystrophy too. my disablities is Arthrogryposis Multiplex Congen. It is lask of muscles.
14-Sep-09 by Amanda wannamaker

Wow! You are a true inspiration .... THANK YOU!
14-Sep-09 by Anna

Way to go Sonny! AHO!
14-Sep-09 by Wendy Preyssler

It was a pleasure meeting you at the Terry Fox Run! You are an encouraging spirit to all that were there! We were meant to meet. Good Luck on your Journey in 2010. You are a very Confident, brave and strong man. I have no doubt that you will complete your vendetta! Have a Great Life...you have touched me on this day and will touch many more on your own Marathon of Freedom.
15-Sep-09 by Teri McGillivray

Wow you have done great. /shirley
15-Sep-09 by shirley heslop

Sonny, you are INCREDIBLE. I don't think I made it in time to vote for your story, but nonetheless you have my full support and respect. I know you'll rock it. Keep on rollin' in the free world! :)
15-Sep-09 by Bree Nabholz

You are truly an inspiration Sonny!! May you continue to be blessed with the courage and strength to achieve your hopes and dreams. p.s. the sonny and chair joke....priceless:):)
15-Sep-09 by Hanna R

You are such a Warrior Sage....many thank yous for being such a bright light in your music, humor, athleticism but most of all just by being! Lots of love Linda
15-Oct-09 by Linda Duarte

You're already a winner Sonny! Congratulations! just keep going
15-Sep-09 by Branka Maudire

I stumbled along this site quite by accident as I was researching something else but read your story and am glad I have. I am another who shares the w/chair journey and who also believes in getting back up no matter how many times different things in life takes you off balance. I believe in making Lemon Maguarita's out of the lemons that life can throw. So, cheers to you and going for Gold :-)
17-Oct-09 by violet valentine

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